I have a goal of writing my cancer story out. It was a very challenging yet rewarding (even at the time) part of my life. As an adult and now having an adult voice I find it easier to express the way I felt about certain situations. I really do feel that one reason that I faced the challenge of having cancer as a young teenager is that I can hopefully one day help parents who have children fighting cancer. Children have a hard time expressing exactly what is going on about how they feel and what they need.
Although every cancer experience is unique and different a part of me feels that my experience was in such a way that I will be able to help others. Cancer is a truly horrible disease. One part of me wants to say it exactly how it all went down for me. The other part of me doesn’t want to share a lot of the nitty gritty. Such is life :) It will always be a question in my mind when to edit and myself when to let myself go. but i just need to say I feel blessed to be alive, I feel blessed to have a family and friends who love me, I feel blessed that no matter what happens to any of us there is never an end and we will always be.
I was 5′4″ at age 13 when I was diagnosed with cancer. I had hit a growing spurt right before I was diagnosed so I was pretty tall for my age. (I’m now 5′6″) Before cancer I was probably 110lbs. At my lowest point I was 71lbs. I was very skinny. I would get bruises by crossing my legs or by resting my head on my hands. It’s not only throwing up and feeling nauseous from the chemo that makes you lose weight. It’s also not having an appetite.
I remember one day, a late afternoon, my sister Stephanie making a hot dog for a snack. I was loving the smell of it warming up in the microwave and I thought that maybe I should make one too. It had been about a week since my last chemo hospital stay and I was feeling pretty good. Stephanie got it out of the microwave and as she continued to prepare it my stomach flipped and the thought and smell of the hot dog now made me want to vomit. I ran into our bathroom (the pink one ;) and threw up. Then I went and laid down in my bed and cried. I hated that I couldn’t be normal like her. That I couldn’t just eat a hot dog because I was hungry. For the rest of the night nothing sounded good to me and the thought of food made me very queasy.
It was like that with a lot of food. Not just when I was at home but especially at the hospital. Every night I got a menu that I could fill out for the cafeteria. I picked out the things that sounded good. Cereal, oranges, speghetti, cookies, cakes…. normal food. But then when the food deliveries came to the door I didn’t want them. A part of the problem was because they came in covered plastic trays and the lids encased the whole tray and these lids absorbed all the smells of all the foods that had EVER been placed underneath them. Normal people with normal noses couldn’t smell the gross smells that were emitted when the lids were removed. Us cancer kids could. in fact as you walked down the halls on the oncology floor many doors had a hand written sign on the front.
“Please leave food trays outside the door”
Because if they were brought into our rooms and the lids lifted off the smell would overwhelm you and make you throw up. I also made a sign every time I checked in and assigned a room. At meal time my nurse would knock on my door and remove the lid and tell me what was for breakfast, lunch, or dinner. If it still sounded good I would have them bring it in. If it didn’t they would send it away.
One week while I was there I was on a very strong chemo that made me throw up non stop. I couldn’t keep anything down… not that I was in the mood to eat much anyway. One night I couldn’t even bear the thought of even looking at the menu to see what I wanted to eat for the next day. I didn’t turn one back into the nurse and she forgot to collect it from me as well. Even when I didn’t feel like anything I still had to turn one in. The next morning I didn’t get any breakfast. Which was fine by me :) The AM nurse felt horrible and came in and asked me to fill out a lunch and dinner menu. I don’t remember the choices for that day but I didn’t feel like any of them. Then all of the sudden I got a craving for a happy meal. A hamburger and fries happy meal sounded good to me. I crossed out the lunch choices and wrote “A hamburger happy meal with a toy please” I knew that was pretty impossible but it really was the only thing that sounded good. It was comfort food.
The nurse took it and I spent the rest of the morning feeling somewhat okay. Then the lunch worker came around our hall. He was pushing a big rack of pink plastic lidded lunch trays. He came to my door and placed it right outside. My nurse picked it up and removed the lid. On a white plate was a hamburger with some crinkle fries. and also a light pink Beanie Baby bear. a little note was underneath the bear that read “Enjoy your “happy meal with a toy” It made me very happy. I had the nurse bring it in and the hamburger and fries smelled wonderful. The nurse went and got me a soda from the little kitchen nearby and I had a nice lunch and was able to keep it down. It was a very good moment.
One day about a year ago when I thought of writing everything out that memory came to my mind and again it put a smile on my face. Then as I continued thinking about it I just started crying. It seemed very simple to me as a child but now I know that a lot more effort went into it. Some kind cafeteria worker got that menu and stopped what they were making (hamburger and fries was not a choice for that day) to make me hamburger and fries and then to go to the gift shop and with their own money buy me a beanie baby. I don’t know who that person is and there is no way to find out. But I wish I could hug them and say thank you and how much it meant to me that I felt loved and taken care of. It was a very Happy Meal :)
I have a testimony that every kind action or service we do unto others does make a difference. I also have a testimony that these actions are more powerful and do more good than any sort of negative action will do in this world. Sometimes it is hard to see that with all the bad stuff that is going on, but I really feel that in my heart that love and kindness conquers all :)